By learning more about surrogacy and its potential challenges, you can ultimately assess whether it is right for you. By understanding the effects that different forms of contraception can have on people with cystic fibrosis, you can choose the method that is right for you.
By learning more about the pros and cons of adoption for a person with cystic fibrosis, you can ultimately decide if it is the right family building option for you. Skip to main content. Our booklet contains information to support you in thinking through the issues in relation to you, your health, your life, your hopes and fears. Download our starting a family booklet. Our resources are free to download and order, but we would be very grateful if you would consider making a donation to help us continue our important work.
In developing this resource, we have spoken with and listened to men and women with CF and their partners. Their stories are told alongside the facts to help put it all in context. You might find it helpful, for example, to hear from a mum with CF who has twins, or to read about what fertility treatment was like for one dad. The photographs in the booklet are all of real people who are sharing their stories with you.
They have done this because they, and we, feel that sharing these stories alongside clinical information will help people with CF and their partners make important life decisions that are right for them. Unknowingly, both Frank and I were carriers of a genetic mutation called DF One in 30 Caucasians are carriers of this defect and if two carriers have children, there's a 25 percent chance their children will have two copies of this genetic defect and be diagnosed with cystic fibrosis.
Initially, we were told our daughter had a terrible disease and she would die young. However, after working with the angels at Phoenix Children's Hospital Cystic Fibrosis Clinic, we learned what CF means and how to help our daughter not just survive, but grow, learn and thrive.
In its simplest terms, the salt and water in a body with CF don't work together like they should. The incompatibility of salt and water in the cells causes thick mucus to form and coat the organs of the body, typically the lungs and digestive system. Although a person with cystic fibrosis has a normal immune system, the bacteria that gets stuck in their lungs when they get sick has a hard time leaving. Additionally, people with cystic fibrosis are not able to utilize the natural release of their own enzymes from their pancreas because the pancreas is blocked by mucus.
This requires that they take prescription enzymes with all food to try to mimic the natural enzymes needed for digestion and nutrient absorption. If these enzymes are not taken with all food the result is no digestion, no growth and no weight gain. Despite the difficulties, our daughter's medical treatments soon became routine and we were blessed to give her a baby brother two years later.
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